Sunday, November 3, 2013
The day started out early for blood tests, then I had a CT of my chest to check up on my lung inflammation, next mom and I walked over to another building for my brain MRI, then we had a nice lunch while waiting to go back and meet with Dr. Magical for results of both scans.
As soon as she walked in I knew it wasn't good. She came in an gave me a big hug, which is not unusual, my Drs. are huggers! After the hug I asked was that a good news or bad news hug. She cut right to the chase and said the news is not so good. She started by saying my chest CT is showing a little less inflammation and they are sure its from the chemo and not melanoma in the lungs. Then she said but the brain mets are growing and its time to get rid of them. Before I could ask any questions she said Dr. Wonder was able to get me an appt. to meet with the best radiologist they have in 30mins. My first response.. so no trick or treating for us huh?(we were suppose to go trick or treating with Jax and my amazing nieces afterward). Ok maybe that wasn't the best first response, but we do love trick or treating right Mom!! Then I got more serious and we asked as many questions as me and mom could think of even though we would be asking the same questions to the radiology surgeon very shortly. But because Dr. Magical is wonderful she sat with us and tried her best to answer as many as she could. My biggest one for her was if this would kick me out of the clinical trial, that seemed to be working great on the rest of my tumors. She thankfully said no, that it might put my next dose on hold but they will figure it all out. Then yes I cried and said I just don't want this anymore...she looked like she was about to cry with me. But just as soon as I had my teary moment I apologized to her and said I am sorry I am strong and I will fight this too. She looked at me and said Julie we ALL know just how strong you are and no one will very doubt your ability to fight. So mom and I said ok lets do this.. where are we off to next? More hugs and on we went!
We took the shuttle bus over to the main hospital meet yet another Dr. I will add to my ever growing list. Luckily for me Dr. Wonder was right he was great and knew his stuff. He and his team treated mom and I like family as soon as we arrived. They told us Dr. Wonder was their favorite and they were more than happy to have us. Now remember it was halloween and already almost 6pm, I am sure everyone wanted to go home just as much as we did but they surely didn't show it, they even gave us tons of candy! Dr. hmmm lets call him Dr. J explained the whole procedure that is know as SRS or gamma knife. He gave us every single potential side effect, short term and long term. He sat with us for over an hour and answered all our crazy questions. I had tons!! And then my great Dad came into the city to finally take us home.
So basically on Wed Nov. 6th I will go into hospital around 6:30am. I will get a metal halo type device fitted on my head, and screwed on with very small needle like pins, next I will have a brain CT with the halo on, then I will wait a few hours while they mathematically plan out the radiation. There are 4 tumors in total as of now(I had another MRI on Friday to get a closer look just to make sure they aren't missing anything). I will be awake for the procedure which will take about and hour and a half. Then I wait in recovery for a while to make sure I don't have any immediate reactions. Then I get to go home. I will have to be under 48 hour watch with someone around(Mom and Joe will take turns), to make sure I don't have any seizures. After that we will wait 6-8weeks and rescan to see if it worked. I wont go into all the side effects or things that can go wrong because I am confident that what ever happened my Drs. are on it and its not for us to worry about.
Pray for me and family on Wednesday because I know your prayers are what is keeping us all going!!! NO sadness just positive thoughts. Love you all and thanks for all your constant support.