Am I glad that I am still here fighting two years later...that's a given, but Am I disappointed and deeply saddened that this year came with a stage 4 diagnosis and a "statistical" prognosis of having a 15 percent chance of living in the next five years..YES of course.. And I'm sorry that is just something not worth celebrating!!
But I am still not giving up on it and my Doctors are not giving up on me :) As of yesterday we have yet a new plan. Starting yesterday (after I could barely get myself out of bed without help and started getting rashes all over and a high fever again, even though I hadn't taken the chemo since Friday morning) the plan is to take a low dose steroid and a couple of Ibuprofen every morning with my first chemo dose, then take chemo again at dinner and at night tylenol. If this doesn't work we will try the steroid twice a day. So once again fingers crossed!! Because if it doesn't I not sure there are many other creative ways we can come up with to make my body handle this drug.
Although I know most of these people have the utmost best intentions at heart.. I just can't handle any more advice or opinions on my treatment. Remember everyone I am the one living with this disease so BELIEVE ME I have well researched all my options. And I have FULL confidence in my amazing team of doctors(which are MANY) to continually fill me in on all of the new proven ways of treating Melanoma. I sincerely appreciate all the books, names of other doctors, articles, email links, natural healing methods, supplements from Germany, etc. etc. that I have been receiving in the last few months but its honestly too much. Right now I am simply just trying to get through each day, but I assure you I am doing all things possible to beat those damn statistics!!! I truly hope I have not offended anyone by saying this because like I said these people are people I love and care for and who just want to help in anyway possible.